Liveline

Liveline

Kieran Cuddihy takes your calls and gets to the heart of the discussions that matter to the people of Ireland. 

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Resumen del episodio

Host Cormac O'Hara interviews Jessie and Aoife following the HSE announcement that Skyclarys will be funded and provided to individuals living with Friedrich's ataxia. The episode captures the emotional aftermath of a successful campaign involving lobbying, protesting, and public mobilization to secure access to this life-altering medication. The conversation details the personal impact of the decision, focusing on the hope for reduced disease progression and the ability to maintain physical functions. The guests reflect on the immense support received from the Irish public and political figures, framing the victory as a testament to the power of collective community action.

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Destacados

I was just reading the phrases and I just couldn't believe it. And then I obviously busted the tears and was just so relieved that I didn't have to fight anymore.

00:00:57 · Jessie describes her emotional reaction upon learning that the drug would finally be funded.

I'm just so, so grateful for this stroke to be able to give me more time with her.

00:01:29 · Jessie explains that her primary motivation for the campaign was securing more time with her five-year-old daughter.

I know the drug is worth, or, you know, it costs so much money, but we are worth that money.

00:03:14 · Aoife asserts the inherent value of patients' lives despite the high cost of the medication.

I finally feel like I could breathe again. I tell you, I'm going to have the best sleep in my life.

00:04:28 · Aoife expresses the profound sense of relief following the end of the long struggle for treatment.

The power of the people, yeah. All the people standing together, that's what made the difference.

00:05:31 · Cormac O'Hara reflects on how public solidarity drove the successful outcome for the Friedrich's ataxia community.

Episodios

5166-

"I am so grateful for this drug to give me more time with my little girl"

Host Cormac O'Hara interviews Jessie and Aoife following the HSE announcement that Skyclarys will be funded and provided to individuals living with Friedrich's ataxia. The episode captures the emotional aftermath of a successful campaign involving lobbying, protesting, and public mobilization to secure access to this life-altering medication. The conversation details the personal impact of the decision, focusing on the hope for reduced disease progression and the ability to maintain physical functions. The guests reflect on the immense support received from the Irish public and political figures, framing the victory as a testament to the power of collective community action.

25 ago. 2026
5165-

"From the minute I woke up to the second I went to bed, I was smoking vapes. They just take over your life."

This episode features a harrowing interview with Jacob, who shares his firsthand experience of addiction to HHC cannabinoid vapes and the severe physical and mental health consequences he faced, including hospitalization and intense withdrawal symptoms. He discusses the ease of access to these products in shops and the resulting financial and familial strain. The discussion expands to include warnings from a respiratory nurse regarding a potential 'new heroin epidemic' due to irreversible lung damage caused by these vapes. The episode also features personal accounts from parents witnessing the physical and behavioral decline in their children, highlighting a widespread issue of substance use among youth and the urgent need for better intervention resources.

25 ago. 2026
5164-

"I have been told by multiple professionals that she probably has to reach rock bottom to get help."

Eilish shares the harrowing experience of her 14-year-old daughter's rapid decline and addiction to HHC, a synthetic cannabinoid vape. She describes profound personality changes in her child and the lack of support from medical services like CAMHS and drug helplines. Addiction counsellor Michael discusses the severe psychological impacts of HHC vapes on adolescents, including symptoms such as paranoia and psychosis. He also addresses the difficulties of providing help when users are in denial and the legal responsibilities regarding the distribution of these substances.

24 ago. 2026
5163-

"I have been refused a place in the bus because the bus is full."

Parents across Ireland, including those in Cavan, Kinnegad, and Blarney, are expressing distress over the lack of confirmed school bus tickets for the upcoming school year. Many are being denied concessionary tickets due to capacity issues or strict criteria regarding attending the nearest school, forcing families to rely on expensive private operators. The discussion critiques the Department of Education's criteria and Bus Éireann's implementation, highlighting significant issues with transparency, capacity, and outdated transport systems. Speakers argue that the current shortage was foreseeable and point to official reviews acknowledging that the existing concessionary system is no longer fit for purpose.

24 ago. 2026
5162-

"Not a day goes by where I don't worry. There could be a twinge or a pain and I go 'that's it now'"

Jessie discusses the profound impact of Friedrich's ataxia on her life and her plea to HSE executives regarding the funding of the drug Skyclaris. She emphasizes that access to the drug is about preserving her independence and ability to care for her daughter. The episode also features emotional interviews with advocates and families affected by Friedreich's ataxia, discussing the urgent need for access to a specific drug manufactured in Ireland. Speakers highlight the personal devastation of the disease and call on HSE executives to approve funding despite the country's financial surplus.

24 ago. 2026